Abstract
BackgroundTo describe the quality of life of adolescents initiating haemodialysis, to determine the factors associated with quality of life, and to assess coping strategies and their impact on quality of life.MethodsAll adolescents initiating haemodialysis between September 2013 and July 2015 in French paediatric haemodialysis centres were included. Quality of life data were collected using the “Vécu et Santé Perçue de l’Adolescent et l’Enfant” questionnaire, and coping data were collected using the Kidcope questionnaire. Adolescent’s quality of life was compared with age- and sex-matched French control.ResultsThirty-two adolescents were included. Their mean age was 13.9 ± 2.0 years. The quality of life score was lowest in leisure activities and highest in relationships with medical staff. Compared with the French control, index, energy-vitality, relationships with friends, leisure activities and physical well-being scores were significantly lower in haemodialysis population. In multivariate analyses, active coping was positively associated with quality of life and especially with energy-vitality, relationships with parents and teachers, and school performance. In contrast, avoidant and negative coping were negatively associated with energy-vitality, psychological well-being and body image for avoidant coping, and body image and relationships with medical staff for negative coping.ConclusionsThe quality of life of haemodialysis adolescents, and mainly the dimensions of leisure activities, physical well-being, relationships with friends and energy-vitality, were significantly altered compared to that of the French population. The impact of coping strategies on quality of life seems to be important. Given the importance of quality of life and coping strategies in adolescents with chronic disease, health care professionals should integrate these aspects into care management.
Highlights
To describe the quality of life of adolescents initiating haemodialysis, to determine the factors associated with quality of life, and to assess coping strategies and their impact on quality of life
The aims of this paper are: (1) to describe the quality of life (QoL) of adolescents initiating haemodialysis treatment compared to French age- and sex-matched population; (2) to investigate factors affecting their QoL; and (3) to assess coping strategies and their impact on QoL
The inclusion criteria were as follows: (1) age 11–17 years at the time of evaluation, (2) first haemodialysis for 4 to 6 weeks, (3) capacity to respond to the questionnaire in French, and (4) explicit agreement to participate in the study and signed informed consent of parents or legal representatives
Summary
To describe the quality of life of adolescents initiating haemodialysis, to determine the factors associated with quality of life, and to assess coping strategies and their impact on quality of life. RRT, especially dialysis, is consuming and invasive, placing high burdens of daily management on children that restrict their physical and social activities [7]. ESRD children must face multiples challenges, including frequent hospitalizations, painful medical procedures, irregular school attendance and restriction of activities. This can have emotional and psychosocial impacts on the children, prompting an interest in thinking about quality of life (QoL), which is increasingly recognized as a key outcome in both clinical and research settings in the paediatric ESRD population. Surviving is not sufficient, and quality of survival has emerged as a fundamental focus of comprehensive healthcare [8]
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