Abstract

BackgroundInfertility affects about 15% of couples in Western-societies with most progressing to fertility clinics for treatment. Despite being common, infertility is often experienced as a lonely road for affected couples. In this paper we expand on our previously published findings of women’s experiences with infertility or difficulty of viable pregnancy who had sought Traditional Chinese Medicine (TCM) therapy in Australia, and focus on women’s quality of life, coping strategies, and support needs.MethodsWe applied mixed methods using the Tuebingen Quality of Life and the COPE questionnaires and in-depth interviews with 25 women with primary or secondary infertility, recurrent miscarriages or unexplained stillbirth, and who had consulted a TCM practitioner. We used a thematic approach to analyse the interviews, and descriptive statistics to evaluate questionnaire responses.ResultsWomen reported through both questionnaires and interviews compromised quality of life due to the high level of distress, guilt, grief, and frustration caused by infertility. However, our women represented a highly motivated sample, actively seeking alternative support. While the TCM approach to infertility management increased women’s sense of personal agency and control through education and continuity of care, the need for greater understanding and support on a societal level remains.ConclusionsIn infertility, ongoing emotional and instrumental support is pivotal to the wellbeing and quality of life of the affected. Traditional Chinese Medicine addresses some support needs in infertility not routinely available in the Western model of care. More peer-led and professional-led support groups are greatly needed for women experiencing infertility to help break isolation and raise awareness of integrative approaches to fertility management.

Highlights

  • Infertility affects about 15% of couples in Western-societies with most progressing to fertility clinics for treatment

  • Most couples in Australia seeking treatment for infertility are referred by their General Practitioner to assisted reproductive technology (ART), including in vitro fertilization (IVF)

  • Characteristics of participants Two-thirds of women in our study were recruited through Traditional Chinese Medicine (TCM) practitioners, the remainder through internet forums, newspaper advertisements, and by other participants Australia-wide

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Summary

Introduction

Infertility affects about 15% of couples in Western-societies with most progressing to fertility clinics for treatment. Infertility, defined clinically as the failure to conceive after one year of unprotected intercourse or demographically as the inability to achieve a live birth [1,2,3], affects a large number of couples in Western societies. Infertility challenges women’s sense of identity, expectations of their life trajectory and their perceived value in society [9,11]. This can lead to feelings of failure, guilt and shame [11,12,13]. Women’s sense of powerlessness can be exacerbated by the Western medical approach, through fragmented care, technical interventions and invasive procedures, and a lack of individualised continuous support [14]

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