Abstract

BackgroundBracing is used as a valid non-surgical treatment for adolescent idiopathic scoliosis (AIS) to avoid progression of the deformity and thereby surgery. The effect of bracing treatment on quality of life of patients with AIS has been a topic of interest in the international literature. The aim of this study was to evaluate the quality of life and patient satisfaction during bracing treatment for AIS of a pediatric hospital.Material and methodWe assessed a total of 43 non-consecutive female patients (mean age at questionnaire, 13 years and 1 month and 10 years and 8 months to 14 years and 5 months; mean period of usage of brace, 1 year and 7 months), with adolescent idiopathic scoliosis (AIS), older than 10 years of age until skeletal maturity, with a Risser sign less than 3 and scoliosis between 20 and 45°, treated with thoracolumbosacral orthosis (TLSO) for a period longer than 6 months, and without other comorbidities or previous surgeries, were evaluated. The patients were administered a previously validated to Spanish questionnaire on quality of life (Brace Questionnaire (BrQ); Grivas TB et al.). BrQ is a validated tool and is considered a disease-specific instrument; its score ranges from 20 to 100 points, and higher BrQ scores are associated with better quality of life.ResultsThe patients reported using the brace for a mean of 17.6 h daily and for a mean period of 1 year and 7 months at the time of the study. Overall, 72% of the study population reported to be in some way psychologically affected by the brace wearing, 56% felt their basic motor activities were affected, 54% felt socialization with their environment was affected, 46% considered their quality of life deteriorated due to pain, and 40% reported conflicts in the school environment.ConclusionPatients with AIS treated with bracing reported a negative impact (53.5% overall) on quality of life and treatment satisfaction in terms of psychological, motor, social, and school environment aspects. An interdisciplinary approach would be important for the integrated psychosocial care of these patients.

Highlights

  • Patients with adolescent idiopathic scoliosis (AIS) treated with bracing reported a negative impact (53.5% overall) on quality of life and treatment satisfaction in terms of psychological, motor, social, and school environment aspects

  • Ninety percent of the patients stated that their life would be better without the brace, 86% did not feel happy, 82% did not feel proud of themselves during treatment, 81% felt tired when wearing the brace, 76% was afraid their curves would become worse, 73% stated to have difficulty being happy with their body image, 70% felt worried, 71% did not feel bracing treatment was entirely beneficial, 70% had difficulty feeling strong or full of energy, 63% felt nervous due to the brace wearing, 59% could not sleep well when wearing the brace, and 42% of the patients stated they felt ill during the bracing treatment

  • We assessed an important change in the domain of psychology, in which 90% of the patients stated that their lives would be better without wearing the brace, 82% did not feel proud of themselves using the brace, 81% felt tired when wearing the orthosis, 73% stated to have difficulty being happy with their body image, 70% felt worried, 63% reported to be nervous, and at least 42% reported to feel ill

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Summary

Introduction

Bracing is used as a valid conservative treatment for adolescent idiopathic scoliosis (AIS) to avoid progression of the deformity and thereby surgery [1,2,3,4,5,6,7,8,9, 14,15,16, 19,20,21,22,23,24, 26,27,28,29, 33, 40, 41, 43, 50, 51, 58]. Bracing is used as a valid non-surgical treatment for adolescent idiopathic scoliosis (AIS) to avoid progression of the deformity and thereby surgery. The aim of this study was to evaluate the quality of life and patient satisfaction during bracing treatment for AIS of a pediatric hospital

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