Abstract
Background: Chronic rheumatologic disease in children is juvenile rheumatoid arthritis, yet little is known about their health-related quality of life .Aim of the study was to describe Health Related Quality of Life in self-reports of children with juvenile rheumatoid arthritis. Subjects and Method: descriptive research design was used in this study. A convenience sampling technique was used for 100 children aged from8 to 18 years who had been attending to rheumatology unit and rheumatology outpatient clinic at Assiut University Children Hospital. Results: There was a statistically significant impaired in pain and hurt, daily activities, treatment, worry and communication among children with juvenile rheumatoid arthritis. Conclusion: children with juvenile rheumatoid arthritis have lower health-related quality of life. Recommendation: The study recommended that health promotion program for children with juvenile rheumatoid arthritis, and their family members are needed. Nurses, physicians, parents and teachers must be informed of the risk for impaired health-related quality of life among juvenile rheumatoid arthritis children to promote interventions that must improve health outcomes.
Highlights
Juvenile idiopathic arthritis (JIA) known as juvenile rheumatoid arthritis (JRA), is the highest public type of arthritis in childhood
QoL could be defined as perception of people about life, values, goals, standard, and interests (16) The results of the present study revealed that the majority of children with juvenile rheumatoid arthritis (JRA) have poor level of quality of life, while only little percentage of healthy children have poor level
The mother must pay attention to some of the symptoms that the child complains, such as joint pain, bloating, morning stiffness and high temperature. These results were agree with, GutiérrezSuárezet al. (11), who observe the health related quality of life of children with juvenile rheumatoid arthritis live in 3 diverse locations, they reported that children with juvenile rheumatoid arthritis have been described to have a poorer health-related quality of life than healthy children, they observed that arthritis pediatric patients in the 14–16 year age group presented lower back forte, ratio of body fat, and performance abilities than health one
Summary
Faransa Ali Ahmed: Lecturer of Pediatric Nursing, Faculty of Nursing, Assiut University, Egypt Safaa Rashad Mahmoud: Assistant. Of Community health Nursing Faculty of Nursing, Assiut University, Egypt Shimaa Abd-elrehem: Lecture of Community health Nursing, Faculty of Nursing, Assiut University, Egypt Alameldin Abdallah: Assisstant Prof of Pediatric Faculty of Medicine, Assiut University, Egypt Abstract Background: Chronic rheumatologic disease in children is juvenile rheumatoid arthritis, yet little is known about their health-related quality of life .Aim of the study was to describe Health Related Quality of Life in self-reports of children with juvenile rheumatoid arthritis. Conclusion: children with juvenile rheumatoid arthritis have lower health-related quality of life. Physicians, parents and teachers must be informed of the risk for impaired health-related quality of life among juvenile rheumatoid arthritis children to promote interventions that must improve health outcomes.
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