Quality of life among adolescents with hemoglobinopathies

Abstract

Background: Hemoglobinopathies constitute the commonest recessive monogenic disorders worldwide, and the treatment of affected individuals presents a substantial global disease burden. Objectives: The purpose of this study is to assess the quality of life among adolescents with hemoglobinopathies in Karbala City/ Iraq. Methods: The cross-sectional study with quantitative approach was carried out on 200 participants who were attending hereditary blood disease center in Karbala teaching hospital for children. The questionnaire's dependability was established through a pilot study, and it was subsequently presented to experts for validation. The information was collected through the use of interview techniques and evaluated using descriptive and inferential statistical analysis. Results: the results of current study indicate that physical function related to quality of life was demonstrate that (42.5%) of adolescent are experienced moderate, emotional function related to quality of life was demonstrated that (36.5%) of adolescent are experienced moderate, and quality of life among Hemoglobinopathies adolescents was demonstrate that (60.5%) are experienced moderate quality of life with average of M ± SD=47.63±24.38. Conclusion: The study concluded that two fifth of adolescent have moderate physical function, One third of adolescent have moderate emotional function, Two fifth of adolescent have moderate social function.