Quality and reliability of online video information of breast cancer in Spanish.

Abstract

11039 Background: Online health information is a central part of how patients learn about a cancer diagnosis. Involving patients in shared decision making is associated with better outcomes. Previous studies have identified a lack of high-quality, reliable online material related to cancer in English using validated tools. As the number of Spanish speaking people in the US, and globally, continues to grow, it is important that high-quality, reliable information is available in Spanish. No studies have evaluated online breast cancer informational videos in Spanish. Methods: A search using the phrase “cancer de mama” (translation: “breast cancer”) was conducted on YouTube. The first 200 video URLs were included for study with duplicates, non-Spanish, and non-informational videos excluded. The videos were characterized by several variables, including year of upload, country of origin, content discussed, views, likes, dislikes, and typology group (“Personal”, “Professional”, “Health Portal”, etc.). The quality and reliability of these videos were examined by measuring Global Quality Scale (GQS), a 5-point DISCERN score, and JAMA scores. Results: 173 videos met inclusion criteria in the study. The majority of the videos which discussed signs and symptoms were uploaded by a ‘commercial’ typology, risk factors mainly uploaded by ‘health portals’ (21%), and treatment options by ‘professionals’ (50%). Relatively few videos have discussed reconstruction, survivorship, and breast cancer in men. 57% of these videos were uploaded prior to 2017, 36% by different personnel followed by government/news agency (25%), and professionals (23%). There was no significant difference between number of views (p-value: 0.526) and likes (p-value: 0.122) among the five typology groups. Professional videos had the highest average GQS (2.55), DISCERN score (1.90), and JAMA score (2.05). Personal videos had the lowest average GQS (1.98) and DISCERN score (1.06). GQS, DISCERN, and JAMA scores were all statistically significantly different between each typology. Conclusions: The majority of online breast cancer videos in Spanish are older than 3 years and produced outside the US. They are generally of poor quality and reliability, although higher in professional videos. Given the lack of current, high-quality, and reliable informational videos available, needs assessments should be conducted to identify the most useful learning resources for Spanish-speaking patients. Specialists should consider uploading educational videos to improve the paucity of high-quality, reliable information online.