Abstract
Objective To understand the feeling of mothers of children with osteogenesis imperfecta during the accompany of children's diagnosis and treatment. Methods A total of 20 mothers of children with osteogenesis imperfecta participated the semi-structured interview. The data were analyzed by Colaizzi's method of phenomenology. Results Three themes were acquired including heavy psychological burden, facing multiple pressure and mother's support through analysis, reorganization and extraction of the subjects. Conclusions Mothers of children with osteogenesis imperfecta needed humanistic concern and emotional support. Nursers should adopted personalized care measures to improve their quality of life. Key words: Osteogenesis imperfecta; Mothers of children; Treatment process; Psychological feeling; Qualitative research
Published Version
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