Abstract

BackgroundThe aging population coupled with progressive medical technology has increased the demand for improved quality of end-of-life in China. However, implementation of an advance care planning (ACP) program in mainland China is still in its infancy owing to the significant influence of filial piety in Chinese culture. Research on implementation of ACP program among community health workers (CHWs) is limited. The current study sought to explore the willingness of CHWs to implement ACP based on the theory of planned behavior (TPB) and provide a reference for promotion of ACP in Chinese communities.MethodsPhenomenological qualitative study using semi-structured face-to-face interviews. Interviews were audio-recorded. Colaizzi’s method was used for data analysis. The study received ethical approval and all participants provided written consent.ResultsThirteen CHWs from 3 community health service centers (CHSCs) in Hangzhou, Zhejiang Province, China were interviewed. Through the analysis of the interview content, we determined that most CHWs have a supportive attitude towards the implementation of ACP, the reasons for which are as follows: relieve suffering of patients and respect their medical autonomy; relieve economic and psychological burden on family members; promote development of community palliative care. However, some CHWs believe that the implementation of ACP will lead to doctor-patient disputes and medical risks. CHWs reported that the support of patients and their families, community lawyers, psychosocial professionals, and CHSCs senior managers helped them to implement ACP. In addition, they indicated that the improvement of doctor-patient communication ability, the improvement of community medical environment, the support of government policy, and the training of CHWs were the promoting factors influencing their implementation of ACP. The hindrance factors include insufficient allocation of community health human resources, imperfect ACP legislation in China, and deep-rooted traditional culture.ConclusionFindings demonstrated that Chinese CHWs tend to support the implementation of ACP, but their willingness to implement is affected by different factors. CHSCs should actively organize standardized ACP training and comprehensively consider community medical environment, organizational norms, and human resources in implementation of ACP.

Highlights

  • The aging population coupled with progressive medical technology has increased the demand for improved quality of end-of-life in China

  • Through the analysis of the interview content, we determined that most community health workers (CHWs) have a supportive attitude towards the implementation of advance care planning (ACP), the reasons for which are as follows: relieve suffering of patients and respect their medical autonomy; relieve economic and psychological burden on family members; promote development of community palliative care

  • CHWs reported that the support of patients and their families, community lawyers, psychosocial professionals, and community health service centers (CHSCs) senior managers helped them to implement ACP

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Summary

Introduction

Implementation of an advance care planning (ACP) program in mainland China is still in its infancy owing to the significant influence of filial piety in Chinese culture. The 2015 Economist Intelligence Unit’s Quality of Death Index that covering five categories: palliative care settings, human resources, care affordability, quality of care, and level of community engagement, indicates that China ranks number 71 out of 80 countries and regions in the world [5]. This indicates the urgent need to improve awareness and quality of palliative care services in mainland China. Chinese medical staff choose to actively treat patients rather than offering palliative care [11]

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