Abstract
INTRODUÇÃO: A equipe multidisciplinar que trata crianças portadoras de fissura labiopalatina busca promover qualidade de vida (QV) a essa população. O objetivo do presente trabalho foi identificar, na literatura, instrumentos que possibilitem a avaliação global da QV dessa população, envolvendo aspectos estéticos, funcionais e resposta do indivíduo ao tratamento. MÉTODO: Foi realizada revisão da literatura disponível no PubMed, no período de 2001 a 2011, em busca de instrumentos específicos para avaliação de QV em crianças portadoras de fissura labiopalatina, com as seguintes palavras-chave (em língua inglesa): quality of life & oral cleft, quality of life & craniofacial deformities, quality of life & oral cleft speech, voice related quality of life. RESULTADOS: Foram identificados 457 artigos relacionados ao tema. Foram avaliados os seguintes instrumentos específicos para a faixa etária pediátrica utilizados na mensuração da QV de pacientes com fissura labiopalatina: Quality of Life Instrument - Craniofacial Surgery (YQOL-CS), Youth Quality of Life Instrument-Facial Differences (YQOL-FD), Child Oral Health Quality of Life Questionnaire (COHQOL), Child Oral Health Impact Profile (COHIP), Pediatric Voice Outcome Surgery (PVOS) e Pediatric Voice-Related Quality of Life Survey (PVRQOL). CONCLUSÕES: Não se identificou, na literatura, um instrumento que avaliasse integralmente as crianças com fissura labiopalatina, no que se refere aos aspectos estéticos, às consequências conceituais e perceptuais, bem como a todos os aspectos funcionais (aparelhos mastigatório e respiratório e ressonância vocal) que envolvem essa importante anomalia craniofacial congênita.
Highlights
Cleft lips and palates are the most prevailing craniofacial deformities; they may affect the lips, nose, alveolar reg ion, and palate
Two specific questionnaires were used for measuring quality of life (QoL) among children with cleft lips and palates: the Youth Quality of Life Instrument – Craniofacial Surgery (YQOL-CS), which aims to assess, from an individual perspective, the impact of surgery on an individual’s life[20]; and the Youth Quality of Life Instrument – Facial Dif ferences (YQOL-FD), which includes six domains that assess the negative consequences of facial deformity on an individual’s life[21]
We identified questionnaires that assess the status of the oral system in addition to perceptual self-assessment that can be used to measure QoL for children with cleft lips and palates
Summary
Cleft lips and palates are the most prevailing craniofacial deformities; they may affect the lips, nose, alveolar reg ion, and palate. We aim to identify instruments in the literature that can be used to assess comprehensive aspects of QoL (related to functionality, aesthetics, and outcomes) for this population. Methods: We searched literature on PubMed published between 2001 and 2011 for specific instruments used to evaluate QoL among cleft lip and palate patients using the following keywords: quality of life & oral cleft, quality of life & craniofacial deformities, quality of life & oral cleft speech, voice related quality of life. Conclusions: No pediatric QoL instrument exists in the current literature that comprehensively evaluates children with cleft lips and palates, including aspects related to aesthetics, conceptual and perceptual consequences, and functionality (chewing and respiratory systems, and vocal resonance) associated with this important congenital craniofacial anomaly
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