Abstract
Background: Urinary disorders have a negative impact on the quality of life and social functioning of patients with multiple sclerosis and can even be more harmful than motor changes. Objective: To perform the cultural and linguistic adaptation of Qualiveen (Brazilian Portuguese) and analyze its reliability and validity. Methodology: It was done the evaluation of the conceptual and linguistic equivalences and then of the psychometric properties of the final Portuguese (European) version. The sample consisted of 72 individuals, who attended a hospital in the center of the country, between 12/3/2016 and 1/14/2017. Results: The European Portuguese version of Qualiveen has conceptual and linguistic equivalence, showing an excellent reliability for the total scale (Cronbach’s alpha of .96) and its subdomains (Cronbach’s alpha of .81 and .93), as well as convergent and discriminant validity. Conclusion: The European Portuguese version of Qualiveen showed adequate psychometric properties. For this reason, it can be used by the scientific community with the purpose of analyzing and describing the impact of urinary disorders on the health-related quality of life of patients with Multiple Sclerosis
Highlights
Today, health-related quality of life plays an important role in health professionals’ decision-making process (Stöhrer et al, 2009)
It is essential to assess the impact of urinary disorders on patients with multiple sclerosis with a view to planning adequate interventions for reducing their impact on the quality of life of these patients
The authors followed the guidelines of Beaton et al (2000) because they were the ones agreed upon when permission was obtained for the linguistic and cultural adaptation of the Brazilian Portuguese version from the Coloplast Laboratories, which own the copyright to Qualiveen
Summary
Health-related quality of life plays an important role in health professionals’ decision-making process (Stöhrer et al, 2009). The Qualiveen questionnaire aims to assess general and urinary-related impact on the quality of life of people with neurological disorders and multiple sclerosis (D’Ancona et al., 2009). It is an extremely specific data collection tool which allows obtaining valid and reliable results for patients with multiple sclerosis. Conclusion: The European Portuguese version of Qualiveen showed adequate psychometric properties For this reason, it can be used by the scientific community with the purpose of analyzing and describing the impact of urinary disorders on the health-related quality of life of patients with Multiple Sclerosis. According to Bonniaud et al (2004), disease-specific measurement tools have the potential for increased responsiveness and likeli-
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