Publics and Populations: The Politics of Ancestry and Exchange in Genome Science

Abstract

While researchers collect and assemble relevant populations for genome studies, they are also, along with project designers and managers, interested in assembling publics. The public holds significant symbolic and discursive appeal for large-scale genome science. This is particularly the case in projects that collect or study aspects of human genome variation where histories of biological racism continue to cast a shadow over the promises of genomic medicine. In one of Canada's first large-scale biobanks, French Canadians, who are understood as a genetically close or homogenous population, are contrasted with what are referred to as ‘immigrants’ and ‘Québecers from various ethnic and racial backgrounds’ in public engagement and consultation forums. These latter groups, thought to provide a form of diversity, both in their views and their biology, are harnessed in the consultation practices as well as in the branding of the biobank. Within the local area of sample collection, the already constructed and available ways to categorise groups provide a powerful frame to narrate the relationship between the public and genome science. The process of making and consulting niche publics not only naturalises particular narratives of national belonging but also enables forms of exchange and sharing in international genome science. Just as assembling populations forms a central component of genome science, displays of publicness are integral for economies of exchange in genome science.