Abstract
To measure attitudes toward newborn genetic testing in our jurisdiction. A cross-sectional, pen-and-paper survey. The survey was administered to the general public and prospective parents in Eastern Canada between April 2010 and December 2010. A total of 648 individuals completed surveys. Positive attitudes were found toward newborn genetic testing, regardless of whether an effective treatment existed for the disorder in question or whether the disorder developed in adulthood. A majority agreed (69%) that testing should be available for any condition to assist with future reproductive decisions. Most respondents (93%) agreed parents should provide informed consent before newborn screening (NBS) was undertaken and that parents had a fundamental right to access NBS if they so choose. Interest in NBS for genetic disorders is generally high, regardless of whether an effective treatment exists. Findings lend support to the expansion of NBS panels to include those disorders currently lacking treatment but highlight consumers' desire for informed consent before testing is undertaken.
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
More From: Journal of Obstetric, Gynecologic & Neonatal Nursing
Disclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.