Abstract

Chronic diseases in childhood can affect the physical and mental health of patients and their families. The objective of this study was to identify the sociodemographic and psychosocial factors that predict resilience in family caregivers of children with cancer and to define whether there are differences in the levels of resilience derived from these sociodemographic variables. Three hundred and thirty family caregivers of children with cancer, with an average age of 32.6 years were interviewed. The caregivers responded to a battery of tests that included a questionnaire of sociodemographic variables, the Measuring Scale of Resilience, the Beck Depression Inventory, the Inventory of Quality of Life, the Beck Anxiety Inventory, an interview of caregiver burden and the World Health Organization Well-Being Index. The main findings indicate that family caregivers of children with cancer reported high levels of resilience, which were associated positively with quality of life, psychological well-being and years of study and associated negatively with depression, anxiety and caregiver burden. The variables that predicted resilience in families of children with cancer were quality of life, psychological well-being, depression and number of children. Family caregivers who were married and Catholic showed higher resilience scores. We conclude that being a caregiver in a family with children with cancer is associated with symptoms of anxiety and with depressive episodes. These issues can be overcome through family strength, well-being, quality of life and positive adaptation processes and mobilization of family resources.

Highlights

  • IntroductionCancer is the second-highest cause of death in children between the ages of 5–14 years, following accidents

  • The results indicated that the highest percentage of caregivers was represented by mothers (77.3%) or fathers (16.1%) of pediatric patients with cancer diagnosis (43.6%), leukemia (17%), tumors (22.1%), osteosarcoma (8.2%) or neuroblastoma (9.1%)

  • Some characteristics of the profile of family caregivers of children with cancer include being a woman, typically the mother of the patient, which is consistent with the results obtained in other investigations [12,62,63]; who is in a productive age (M = 32.60 years), consistent with data from other studies [64,65], who is dedicated to household work and has no formal income

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Summary

Introduction

Cancer is the second-highest cause of death in children between the ages of 5–14 years, following accidents. There has been an increase in childhood cancer in recent decades [1]. Acute lymphoblastic leukemia (26%), brain and central nervous system tumors (21%), neuroblastoma (7%) and non-Hodgkin lymphoma (6%) are among the most common types of cancer in children. The five-year survival of children diagnosed with cancer is greater than 80%, and the prevalence of cancer in children is greater in White and Hispanic ethnic groups [2] based on mortality data from the Mexican. National Institute of Statistics (INEGI by its acronym in Spanish) [3].

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