Abstract
BackgroundPatient-generated health outcome measures are important in the assessment of long-term treatment goals for Rheumatoid Arthritis (RA), but few psychometrically sound measures are available. The MAPLe-RA (Measuring Actual Patient-Led expectations in RA) is a new questionnaire and its psychometric properties are not investigated. This study aims to examine these properties for each of the items using Item Response Theory (IRT) .MethodsParticipants were included if they completed the scale (MAPLe-RA). A one parameter (Rasch) model and a two parameter logistic (2PL) model were applied to these data using M-plus software.ResultsOne hundred thirty-eight patients with RA were included in the analysis. MAPLe-RA scale comprised of 21 items, the mean score was 71 (20.28) ranging from 0 to 105. Most items operated in the high expectations part of the items characteristics curves (ICC). Item discrimination varied widely, items with the highest discrimination capacity from the three domains were: pain (physical domain); control of my RA (self-management) and maintaining social role (psycho-social domain); feeling better overall and involvement in treatment decision making (impact of new treatment domain).ConclusionRA patients’ expectations of treatment are higher in the physical and psycho-social domains and less so in the impact of new treatment domain.Electronic supplementary materialThe online version of this article (doi:10.1186/s12891-015-0690-3) contains supplementary material, which is available to authorized users.
Highlights
Patient-generated health outcome measures are important in the assessment of long-term treatment goals for Rheumatoid Arthritis (RA), but few psychometrically sound measures are available
Patient- generated health outcome measures play an important role in the assessment of long-term treatment goals, for people experiencing Rheumatoid arthritis (RA) and are well positioned to be utilised in assessing new treatments
Study participants A total of 160 outpatient attendees were invited to take part in phase 3 of the study, 138 (86 %) consented and completed the MAPLe-RA questionnaire
Summary
Patient-generated health outcome measures are important in the assessment of long-term treatment goals for Rheumatoid Arthritis (RA), but few psychometrically sound measures are available. The MAPLe-RA (Measuring Actual Patient-Led expectations in RA) is a new questionnaire and its psychometric properties are not investigated. Patient- generated health outcome measures play an important role in the assessment of long-term treatment goals, for people experiencing Rheumatoid arthritis (RA) and are well positioned to be utilised in assessing new treatments. In RA, there is no gold standard measure for the assessment of patient’s expectations at time of diagnosis or before commencing treatment. To fill this gap we developed a new patient-generated expectancy measure, called Measuring Actual Patient-Led expectations in RA (MAPLe-RA) scale [1]. The Physical domain (physical impact of RA): with the new treatment, I expect: Q1: The swelling of the joints to be Much better Better Same
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