Abstract
Over 400,000 people live in care home settings in the UK. One way of understanding and improving the quality of care provided is by measuring and understanding the quality of life (QoL) of those living in care homes. This review aimed to identify and examine the psychometric properties including feasibility of use of dementia-specific QoL measures developed or validated for use in care settings. Systematic review. Instruments were identified using four electronic databases (PubMed, PsycINFO, Web of Science, and CINAHL) and lateral search techniques. Searches were conducted in January 2017. Studies which reported on the development and/or validation of dementia specific QoL instruments for use in care settings written in English were eligible for inclusion. The methodological quality of the studies was assessed using the COSMIN checklist. Feasibility was assessed using a checklist developed specifically for the review. Six hundred and sixteen articles were identified in the initial search. After de-duplication, screening and further lateral searches were performed, 25 studies reporting on 9 dementia-specific QoL instruments for use in care home settings were included in the review. Limited evidence was available on the psychometric properties of many instruments identified. Higher-quality instruments were not easily accessible or had low feasibility of use. Few high-quality instruments of QoL validated for use in care home settings are readily or freely available. This review highlights the need to develop a well-validated measure of QoL for use within care homes that is also feasible and accessible.
Highlights
There are approximately 16,000 care homes in the UK providing care for an estimated 416,000 people (Care Quality Commission, 2017a; NIHR, 2016); in the US over 2 million individuals are cared for in approximately 45,000 facilities (Centre for Disease Control and Prevention, 2017)
After de-duplication, screening and further lateral searches were performed, 25 studies reporting on 9 dementia-specific quality of life (QoL) instruments for use in care home settings were included in the review
Few high-quality instruments of QoL validated for use in care home settings are readily or freely available
Summary
There are approximately 16,000 care homes in the UK providing care for an estimated 416,000 people (Care Quality Commission, 2017a; NIHR, 2016); in the US over 2 million individuals are cared for in approximately 45,000 facilities (Centre for Disease Control and Prevention, 2017). These numbers are expected to increase with an ageing population (Prince et al, 2014). A number of dementia-specific QoL measures have been developed; most of these were developed and evaluated in community-dwelling populations, rather than in care homes (Bowling et al, 2015). This review aimed to identify and examine the psychometric properties including feasibility of use of dementia-specific QoL measures developed or validated for use in care settings
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