Abstract

Background: Childhood bronchoasthma consistently pose diverse caregiving burdens yet, magnitude of these and coping mechanisms adopted by caregivers are infrequently assessed during routine care only focused on index patients. Methods: A partially mixed descriptive cross-sectional study was conducted for a minimum of 408 respondents. The results were presented in form of tables and text. Results: A total of 408 caregivers were surveyed, with a mean age of 33 years (SD=9.86). Majority (78.7%) were actual parents of whom 73.5% were married. Primary-level education was the highest attained by 64% of caregivers while those earning <10,000 KES per month were 76% with about 3 out 4 being self-employed. Significant psychological concerns include sleep disturbance on the night previous to the interview, caregivers’ concern about the child's asthma medication and side effects. Work absenteeism; reduced total annual income; lost job; discontinued child schooling and delayed family investment/cut budgets were significant social/economic burdens. Most caregivers used escape-avoidance coping mechanisms with a significant majority being involved in substance abuse (72.3%); feeling helpless or downplayed the severity of symptoms because of myths and stigma. Young age (p=0.002); being widowed (p=0.040), and being of low level of education (p<0.001) were associated with poor coping mechanisms. Conclusions: There was considerable prevalence of psychological burden and socio-economic status among caregivers with significant majority using adversarial coping mechanisms, particularly among socio-economically disadvantaged.

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