Abstract

This study explored psychological functioning and coping styles in adult patients with soft-tissue sarcoma who underwent surgical procedures in a single expert sarcoma medical center in Canada. This is a qualitative study with three formats of data collection. The interview guide was based on theoretical health-related quality of life model. We began the investigation with 2 online and 2 in-person focus groups. Four individual semistructured interviews were added to further explore emerging themes. Data were analyzed using inductive thematic networks approach. Twenty-eight adults (13 female, 24-75 years of age) participated. In the domain of psychological functioning we identified three main themes; changes in mood, worry, and body image concerns. In the domain of coping styles, we identified four adaptive coping styles; positive reframing and optimism, finding a purpose, being proactive, and using humor. Among the maladaptive coping styles, we found passive acceptance, and avoidance and denial. Psychological well-being can be contingent on physical functioning and coping styles in adults with soft-tissue sarcoma. Both psychological and physical function impact quality of life. Patients with more physical limitations, psychological distress and maladaptive coping styles should be monitored for their well-being.

Highlights

  • Background and ObjectivesThis study explored psychological functioning and coping styles in adult patients with soft‐tissue sarcoma who underwent surgical procedures in a single expert sarcoma medical center in Canada

  • Eligible participants registered within a prospective database of all sarcoma patients since 2003 were first approached by phone and invited to participate by medical personnel and research assistants

  • We identified four adaptive coping styles—positive reframing and optimism, finding meaning, being proactive, and using humor—and two maladaptive coping styles—passive acceptance, and avoidance and denial

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Summary

Introduction

This study explored psychological functioning and coping styles in adult patients with soft‐tissue sarcoma who underwent surgical procedures in a single expert sarcoma medical center in Canada. Methods: This is a qualitative study with three formats of data collection. The interview guide was based on theoretical health‐related quality of life model. In the domain of psychological functioning we identified three main themes; changes in mood, worry, and body image concerns. Conclusions: Psychological well‐being can be contingent on physical functioning and coping styles in adults with soft‐tissue sarcoma. Both psychological and physical function impact quality of life. Patients with more physical limitations, psychological distress and maladaptive coping styles should be monitored for their well‐being

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