Abstract
The University of Minnesota Medical Center and Masonic Children’s Hospital EB Center offers comprehensive multidisciplinary care to children with Epidermolysis Bullosa (EB). This is the only center in the United States to offer Bone Marrow Transplantation (BMT) as a treatment for EB. To determine candidacy, these patients come to the Operating Room to have their dressings fully removed, labs drawn, photographs taken and skin biopsies collected under general anesthesia. The child is transported to PACU and remains under sedation while dressings are reapplied, often a 2-3 hour process. Since these patients are at high risk for severe blistering skin injuries, it was evident that modifications to equipment, practice changes, and staff education needed to occur to keep them safe during critical times in Perioperative Services when their usual expert care provider, often a parent, is not present.
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