Abstract
BackgroundThe responsibility of caring for relatives with mental illness often falls on the family members. It has been reported that the reactions to or consequences of providing care are what rendered the role of a caregiver challenging and hence a source of distress. This present study thus aimed to identify socio-demographic correlates of caregiving experiences using the Caregiver Reaction Assessment (CRA) and to examine the associations between reactions to caregiving and psychological distress.MethodsA total of 350 caregivers with relatives seeking outpatient care at a tertiary psychiatric hospital were recruited for this study. Distress among caregivers was assessed using the Patient Health Questionnaire (PHQ-9). The CRA was administered to measure reactions from caregiving in four domains including impact on schedule and health (ISH), impact on finance (IF), lack of family support (LFS) and caregiver esteem (CE). Participants also completed a questionnaire that asked for their socio-demographic information. Multivariable linear regression analysis was first used with domains of CRA as outcome variables and socio-demographic variables as predictors in the models. The next set of multivariable linear regression analysis tested for the association between CRA domains and distress with CRA domain scores as outcome variables and PHQ-9 score as predictor, controlling for socio-demographic variables.ResultsSocio-demographic correlates of CRA domains identified were age, education, employment, income and ethnicity. Domain scores of CRA were significantly associated with PHQ-9 score even after controlling for socio-demographic variables. A higher distress score was associated with greater impact felt in the domain of ISH (β = 0.080, P < 0.001), IF (β = 0.064, P < 0.001), and LFS (β = 0.057, P < 0.001), and was associated with lower CE domain scores (β = −0.021, P < 0.05).ConclusionThis study identified several socio-demographic correlates of caregiving reaction in the different domains. Each of these domains was found to be significantly associated with caregiver distress. Higher distress was associated with stronger impact on the negative domains and a lower impact in the positive domain of caregiving reaction. Interventions such as educational programs at the caregiver level, and also promoting wider social care support in these domains may help to address caregiver distress.
Highlights
The responsibility of caring for relatives with mental illness often falls on the family members
Informal caregivers suffer from psychological distress due to their caregiving roles and elevated depressive symptoms are often a manifestation of distress [3]
All four domains of caregiving reactions: impact on schedule and health, impact on finance, lack of family support, and caregiver esteem were associated with psychological distress as assessed by the Patient Health Questionnaire-9 (PHQ-9)
Summary
The responsibility of caring for relatives with mental illness often falls on the family members. Notwithstanding the detrimental effects of caregiving, there are positive outcomes from having to care for one’s relatives- gratitude and appreciation from patients, improved family cohesion, developing resilience, and gaining a sense of self-worth and accomplishment [18,19,20]. These positive aspects of caregiving, in turn, have been associated with lower levels of caregiver burden and depression [21]
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