Protection of Genetic Data in Health Services Based on Genomics Technology in Indonesia

Abstract

Indonesia is developing precision medicine by integrating genomic capacity into health services. Currently, there is no comprehensive regulation governing these services, resulting in legal uncertainty regarding the regulation of personal data protection (genetic data) based on Indonesian statutory provisions. The purpose of this research is to immediately form implementing regulations to regulate in detail Personal Data Protection in genomics-based health services in Indonesia.  The research method used is normative juridical (Legal Research) which is descriptive analytical in nature using a statutory approach and using secondary data types.  The results of this study explain that broadly speaking, genetic data generated from genomics-based technology is one of the data that should be protected by the State with provisions, rights and obligations and sanctions that should be obeyed by all interested parties. The establishment of an independent Data Controller is needed in an effort to implement personal data protection. The conclusion obtained by the author is that the PDP Law has not been implemented clearly and completely so that it requires derivative regulations that ensure the implementation of the protection of personal data of the community