Abstract

Hemodialysis patients suffer from long-term pain that drains their energy and contributes to behavioral interference and other negative effects on their daily lives that result in or exacerbate functional limitations. In addition, they deal with dietary restrictions, symptoms such as itching, lack of energy, and psychological stressors like the loss of self-concept and self-esteem. Self-regulation involves the capacity to notice, inform, and modulate responses and behavior, and research indicates that it promotes rehabilitation in chronic pain patients. Research on the aspects of self-regulation afforded by the Japanese psychotherapy Dohsa-hou correspond to psychological processes tied to the sense of self-control that clients realize over their body movements. This study pilot tested a hospital-integrated implementation of Dohsa-hou relaxation tasks as a chronic pain management behavioral intervention for five female hemodialysis patients between the ages of 59–62 years. We conducted an ABABABA single-case design to compare baseline A-phases (treatment-as-usual: TAU) taken at recurring 1 week intervals (three sessions per week for a total of 4 weeks, 12 total recordings) with an intervention of Dohsa-hou B-phases every 4 weeks (three sessions per week for 12 weeks, 36 total recordings) over the span of 4 months to compare effectiveness. Visual Analogue Scale (VAS) pain scores between phases were taken and self-regulatory progress was tracked and summarized from a series of semi-structured interviews. Visual analysis of scores for each participant as single cases indicated decreases for the Dohsa-hou phase compared to baseline treatment-as-usual. As a result, participants reported using Dohsa-hou to reduce pain and experienced improvements in quality of life associated with greater self-regulatory capacity to attend to personal care and domestic activities. These preliminary findings suggest that Dohsa-hou body movement relaxation tasks were feasible as a coping skill in a hospital-integrated setting and at home and show promise for promoting quality of life vis-a-vis the management of severe and chronic bodily pain associated with end-stage renal disease and its treatment, particularly by improving aspects of pain-mediated self-regulatory fatigue.

Highlights

  • Patients with chronic conditions are faced with the challenging prospect of comprehensively managing their disease and its symptoms

  • While chronic conditions each have their own subset of challenges, the treatment of end-stage renal disease (ESRD) is characterized by the management of its symptoms, and by the requisite difficulties imposed by its treatment, often in the form of chronic bodily pain

  • The study proposes that hemodialysis patients learn to manage their chronic pain on their own through the deliberate practice of movement tasks aimed at changing feeling states that can be applied upon the onset of pain and at home on an asneeded basis

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Summary

Introduction

Patients with chronic conditions are faced with the challenging prospect of comprehensively managing their disease and its symptoms. Pain becomes especially troublesome as patients are already making negotiations about the quality of their lives in the form of adjusting to the changes that are required to adhere to the treatment regimen of their disease. While chronic conditions each have their own subset of challenges, the treatment of end-stage renal disease (ESRD) is characterized by the management of its symptoms, and by the requisite difficulties imposed by its treatment, often in the form of chronic bodily pain. The primary aim of the current study was to develop a program to provide psychological support through relief from the bodily pain that patients experience under the duress of prolonged treatment for ESRD, and to pilot test and qualitatively evaluate its proof-of-concept for indications of changes in quality of life

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