Programmed Sports Therapy (PST) in People with Haemophilia (PwH) \u201cSports Therapy Model for Rare Diseases\u201d

Thomas Hilberg

doi:10.1186/s13023-018-0777-7

Abstract

Sports and exercise therapy becomes more and more integrated in the treatment plan of different diseases. Although the benefits of this therapy are of high quality evidence, e.g. in cardiovascular diseases, no concepts of sports therapy are available as a treatment option for rare diseases.During the last eighteen years, we analyzed the situation as well as necessity, and developed a model, contents and the concept of the “Programmed Sports Therapy (PST)” for the treatment of PwH (people with haemophilia) as our model of rare disease. Many studies have shown that motoric skills are depressed in PwH, and that this gap to healthy people increases during age. The only way to reduce this progression is an appropriate therapy, adapted to the necessities of PwH. In haemophilia, in particular, physio- and sports therapy treatments should go hand in hand, the first in the acute phase after bleeding, the second later, after the acute phase has finished. One model, which considers all the different challenges, can be the cogwheel model presented here. Since haemophilia is a rare disease, new training concepts are necessary because classical group therapies are often impossible. PST based on the combination of sports therapy camps together with a supervised autonomous home training helps to directly bring the training to the trainee, in order to enhance key competences and improve the individual situation in PwH, and perhaps in patients with other rare diseases.The experience and scientific data substantiate the success of “Programmed Sports Therapy (PST)” and even this can be a model for other rare diseases.

Highlights

This is a narrative review about the necessity and development of a sport therapy concept focusing on rare diseases, and in this special case of haemophilia
Sports therapy Background of sports therapy Since the term of “Sports Therapy” is not common in every country and sometimes ambiguous in use, it is important to firstly present a definition: “Sports therapy is an exercise therapy - based on the motoric skills - which is prescribed by a physician including behavior-orientated components, planned and dosed by sports therapists, but controlled together with physicians and performed - supervised by therapists - by the patient alone or in a group”
The numbers are corresponding in both figures and concrete exercises for every component are available a Conclusion During the last eighteen years, sports therapy has been developed in the treatment of people with haemophilia (PwH) and even should be developed for other rare diseases

Summary

Introduction

Background This is a narrative review about the necessity and development of a sport therapy concept focusing on rare diseases, and in this special case of haemophilia. Together with flexibility, have a main role in inter- and intraarticular joint play, endurance has a further overall physical effect, not least, because it improves cardiovascular [4, 5], metabolic [6], as well as immunological function [7].

Results

Conclusion