Private Tragedy in Social Context? Reflections on Disability, Illness and Suffering

Abstract

This article reviews aspects of the debate about the contested divide between disability and illness. It considers this divide in the context of three main themes: political efficacy; contradictions between the project of accommodation and that of cure; and Western cultural concerns with bodily control. It suggests that attempts to specify a distinction between disability and illness simply shift the boundaries of social and conceptual exclusion. Chronically sick people remain stigmatised, with their strengths unrecognised and measures to improve their lives unformulated. While acknowledging the serious difficulties involved, the article argues for a more inclusive and diverse movement, which can encompass those whose suffering is resistant to social accommodation.