Abstract

Wearable devices that record brain signals may present privacy concerns for consumers. Industry leaders discussed four such concerns with us that pertain to data collection and management, user autonomy and information transparency, exceptionalism of brain data, and regulatory systems.

Highlights

  • What We’re Trying to Do Is to Democratize Access to Brain Health. (Interview 3) Direct-to-consumer (DTC) wearable devices that record brain signals are readily available on the consumer marketplace

  • Through a study we conducted with DTC neurowearable industry leaders, we observed that they too are thinking about key privacy issues and the lack of international standards

  • Through a structured secondary analysis (Cabrera et al, 2015) of interviews with neurowearable company leaders or their senior level designates (Minielly et al, 2020), we identified privacy concerns that clustered into four major thematic categories: data collection and management, ethics principles, exceptionalism of brain data, and international policies, laws, and standards (Table 1)

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Summary

INTRODUCTION

What We’re Trying to Do Is to Democratize Access to Brain Health. (Interview 3) Direct-to-consumer (DTC) wearable devices that record brain signals (neurowearables) are readily available on the consumer marketplace. According to market research by Neurotech Reports, the global neurotechnology product market is valued at approximately $9.1 billion and will grow to approximately $15.1 billion by 2024. These devices are marketed for wellness and enhancement among other human phenomena and aim to empower users with insights into their brain health (Coates McCall et al, 2019). In a sense, they are democratizing brain health. No prior reports from this group have been published in either the peer-reviewed or gray literature

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