Primary care physicians experiences of caring for cancer survivors: Toward developing a primary care-responsive cancer survivorship research agenda.

Abstract

97 Background: Understanding of the ecology of primary care can inform efforts that aim to build primary care capacity to address cancer survivorship issues. This study describes the experiences of primary care physicians (PCPs) delivering care to cancer survivors. Methods: Semi-structured in-depth interviews were conducted with PCPs (n=30) across two NCI-funded studies of cancer survivorship in primary care. PCPs were recruited from primary care practices enrolled in a qualitative case study of cancer survivorship in patient centered medical homes (R01 CA176545; n=21) and from a sample recruited for the formative development of a primary care mHealth and health coaching interventions for cancer survivors (R01 CA176838; n=9). Interviews averaged 30 minutes, were audio-recorded and transcribed verbatim. A multi-step immersion/crystallization approach was used to identify emergent themes using Atlas.ti. Results: PCPs stated that their role in cancer survivorship care varies widely and is often shaped by patient characteristics. These characteristics include: patient expectations of the PCPs role; the patient’s ability to provide clinical details about their cancer and its treatment; and the status of patient relationship with cancer treatment team. PCPs described having incomplete information and recounted experiences of cancer survivors presenting for visits motivated by fear of disease recurrence. PCPs described the tensions around having to make decisions about further additional testing versus offering support about recurrence of fears with incomplete clinical information. PCPs also expressed a need for basic clinical information and surveillance plans to be integrated into existing systems of care (e.g. electronic medical record systems and registries), citing immunization schedules as a potential model. Conclusions: The lack of clinical information to inform cancer survivors’ care remains a critical challenge to PCPs. Survivorship care plans are a proposed strategy to rectify informational deficits; however, further evaluation of how effectively care plans integrate into primary care systems and processes are needed.