Presence of monthly seizures affects perceived stigma in children with epilepsy

Abstract

Reducing negative attitudes such as stigma for children with epilepsy is one of the most important goals of clinical management. However, it is not investigated how seizure frequency can affect perceived stigma in children with epilepsy. The purpose of this study was to identify a relationship between seizure frequency and perceived stigma in Japanese children with epilepsy. Inclusion criteria were: (1) age of 12–18 yr, inclusive; (2)≥6 mo since epilepsy onset; and (3) the ability to read and speak Japanese. As a control group, 15 healthy children were recruited. A questionnaire concerning measures of psychosocial functioning was divided into five parts. Participants indicated whether they agreed or disagreed with each statement using a 5-point scale. In addition, participants were asked to rate how often they felt or acted in the ways described in the items on a 5-point scale using the child stigma scale. Participants comprised 33 Japanese patients (18 boys, 15 girls) with epilepsy. Children with frequent seizures showed significant impairment of psychosocial functioning compared to seizure-free children (P