Abstract
BackgroundMany patients consider the interface between secondary and primary care difficult, and in particular, the transition of care between these different parts of the healthcare system presents problems. This interface has long been recognized as a critical point for quality of care. The purpose of our study is to formulate solutions to problems identified by cancer patients and healthcare professionals during the transition from hospital back to general practice on completion of primary treatment for cancer.MethodsA qualitative study based on focus groups at a seminar for professionals in both primary and secondary healthcare. Participants discussed solutions to problems which had previously been identified in patient interviews and in focus groups with general practitioners (GPs), hospital doctors, and nursing staff. The data were analyzed using framework analysis.ResultsSolutions, endorsed by all groups at the seminar to improve transition back to general practice after primary treatment for cancer, were: 1) To add nurses’ discharge letters addressing psychosocial matters to medical discharge letters; 2) To send medical discharge letters earlier from some hospital departments to GPs; 3) To provide plans and future affiliations for patients when they leave a department, and 4) To arrange a return visit to general practice dedicated to discussion of the patients’ cancer disease and the treatment experience.ConclusionsThe transition of care of cancer patients appears too complex to be coordinated by administrative standards alone. We recommend that healthcare professionals are more engaged and present in the coordination of care across organizational boundaries.
Highlights
Many patients consider the interface between secondary and primary care difficult, and in particular, the transition of care between these different parts of the healthcare system presents problems
The following suggestions for improvements in the transition of cancer patients from secondary to primary care were considered relevant and feasible by all the healthcare professionals who participated in our study: 1. Nurses’ discharge letters should be communicated to general practitioners (GPs)
Return visits to general practice should be established after primary treatment for cancer
Summary
Many patients consider the interface between secondary and primary care difficult, and in particular, the transition of care between these different parts of the healthcare system presents problems. This interface has long been recognized as a critical point for quality of care. Patients are vulnerable during and after treatment; they often feel insecure in the transition of their care [4] and wish for better continuity [5] Patients, and their relatives, find the role of the general practitioner (GP) important and they have expectations of their GP with regard to follow-up care. While the descriptions of the integrated cancer pathways in Denmark specify the role of the GP in the diagnostic process in detail, this is not the case when it comes to the transition of care from hospital back to primary care following treatment e.g. [7, 8]
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