Abstract

BackgroundThe needs of people with dementia (PWD) have not been assessed in any Latin American country. Several European countries have already related unmet needs with quality of life, caregiver’s age, burden, stress, anxiety and depression. The aim of this study was to identify met and unmet needs in Chilean older adults with dementia and to determine if those needs were associated with PWD’s, their informal caregivers’ and social factors.MethodThis was a cross-sectional study. One-hundred and sixty-six informal caregivers and their care recipients were interviewed. PWD was assessed about cognitive function and their caregivers answered instruments about PWD’s needs, functional status and behavioral and psychological symptoms. Caregiver’s burden, depression, anxiety and social support were also evaluated. A stepwise multiple linear regression analysis was performed to determine predictors of unmet needs in Chilean PWD.ResultsThe most frequent met needs were “Looking after home” (81.3%%), “Food” (78.9%) and “Selfcare” (75.3%). Most common unmet needs were “Daily living activities” (39.2%), “Company” (36.1%), and “Memory” (34.9%). Caregivers’ lower age was correlated to a higher number of PWD’s unmet needs (rs = −.216; p < 0.005). Higher PWD’s dependence was associated with higher number of unmet needs (rs = .177; p < 0.05). The best predictors of unmet needs were caregivers’ low level of social support, high burden, young age and high level of anxiety.ConclusionIt is necessary to address psychological and social needs of PWD. The fact that PWD’s unmet needs were associated mostly with caregivers’ factors, highlights the importance of considering both, the PWD and their informal caregivers as targets of institutional support. It is expected that recently launched national public policies decrease PWD’s unmet needs by the provision of new services for them and their informal caregivers.

Highlights

  • The needs of people with dementia (PWD) have not been assessed in any Latin American country

  • The aim of this study was to identify met and unmet needs in Chilean older adults with dementia and to determine if there was a relation between their needs and personal, social and caregivers’ factors

  • The frequency of Camberwell assessment of need for the elderly (CANE) met and unmet needs by area are shown in Tables 3 and 4

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Summary

Introduction

The needs of people with dementia (PWD) have not been assessed in any Latin American country. In Chile, it has been estimated that 1.06% of the population over 60 years old (around 200,000 people) have some kind of dementia [4, 5]. Chile is currently starting to pilot the first national strategy for dementia, which includes new initiatives to address this condition [8, 9]. In this context, in order to provide appropriate interventions and social services, the assessment of needs in PWD becomes crucial [6, 10, 11]. Needs can be studied considering the person’s own perspective (subjective need) or through the perception of a

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