PPI in Research Ethics and Ethics in PPI

Abstract

This chapter will explore the ethical issues arising from the dynamics of building working relationships between diverse potential partners and stakeholders when considering patient and public involvement (PPI). It will specifically look at: Connecting ethics, everyday actions and research activities Why laws exist to govern ethics in research? What is lay involvement in research governance? What is lay involvement in research ethics? What are the ethics of lay involvement? How may people and issues be included and excluded? Ethics and power Identifying and deciding ethical issues in practice