Abstract
PURPOSE The aim of the study was to investigate at what age children born with myelomenigocele could do self clean intermittent catheterisation (self-CIC) independently, and to explore the children's possibilities and limitations for managing self-CIC. MATERIAL AND METHODS The present study took place at Section for Child Neurology. A questionnaire was administered to 54 children aged 5-16 years with myelomenigocele assessing their performance of self-CIC. The questionnaire was completed by the main investigator (M.S.) in collaboration with the parents and the child. Self-CIC requires motor and cognitive skills equivalent of 5 years of age or higher, thus only children of 5 years and older were candidates for the study. RESULTS CIC was performed by 78% (42/54) of the children. Self-CIC was performed by 26% (11/54), the youngest child was 6 years and 11 months. The remaining 31 children were assisted in doing CIC. The following factors may explain why self-CIC was not achieved in 31 children: reduced concentration, low motivation, reduced hand function, and dependency on help from parents/caring persons. CONCLUSIONS Self-CIC is a goal for well-functioning children with myelomenigocele and we found that 26% of the children managed self-CIC. Selection of patients, interdisciplinary collaboration and treatment is important to improve the percentage of children managing self-CIC. Moreover, close collaboration with family and close caring persons is important in order to perform self-CIC successfully.
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