Abstract
Duchenne muscular dystrophy (DMD) is a rare, progressive, life-threatening pediatric neuromuscular disease. Disruption to daily activities can begin as early as aged 3 years, while loss of ambulation generally occurs in early adolescence. This study aimed to explore the symptoms and impacts of DMD on health-related quality of life (HRQoL), activities of daily living (ADLs), and physical functioning. Fifteen primary caregivers of males with DMD participated in a 60-minute, semi-structured telephone/online interview.
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