Abstract

Huntington’s Disease (HD) is a rare, neuro-degenerative disorder with patients experiencing long term disability due to their condition. HD patients universally require caregiver support during their lifetime which is often associated with a large caregiver burden. This research explores the burden associated to caregiving by means of a set of questions, including the Work Productivity and Activity Impairment (WPAI) tool, and descriptively explores differences by disease stage.

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