Planning for the future of a pediatric kidney transplant recipient with special needs: A parent's perspective.

Abstract

I was asked to write this article to share with medical professionals, my view as a parent with a child who has special needs and needs a transplant. It is a detailed story from a parent's point of view on what it is like to have a child with special needs with serious medical complications and how I went about finding and managing my daughter's care. I summarize my own personal experiences based on my years of planning for my daughter.