Abstract
BackgroundPhysical activity has been cited as a potential symptomatic treatment option for people living with dementia. At present, much of the research concerning physical activity and dementia considers older adults, and there are several review articles summarising the evidence in this area. Less is known about physical activity for younger people with dementia, despite the marked differences in needs and preferences between the two groups. The aim of this scoping review is to systematically explore and critically appraise the current state of the evidence regarding physical activity for people with young-onset dementia and carers.MethodsSeveral electronic databases (i.e. MEDLINE, SPORTDiscus, CINAHL, Cochrane Library, PsycINFO, Applied Social Sciences Index & s (ASSIA) and Scopus), grey literature (i.e. NICE Evidence Search (UK) and targeted international organisations e.g. Alzheimer’s Society (UK), Age UK, Young Dementia UK, Alzheimer’s Association (USA), Dementia Australia) and trial registries (i.e. UK Clinical Trials Gateway, International Clinical Trials Registry Platform and EU Clinical Trials Register) will be searched for published and unpublished evidence regarding physical activity for people with young-onset dementia and carers. Studies included in the review will be subjected to a narrative synthesis to explore similarities and differences, both within and between studies, to identify patterns and themes and to postulate explanations for research findings (e.g. how and why certain interventions or programmes have worked (or not); factors that might have influenced the findings ).DiscussionThis will be the first review to systematically explore and critically appraise the current state of the evidence regarding physical activity for people with young-onset dementia and carers. It is hoped that findings from this review will be used to inform the development of future physical activity interventions, to serve as a basis for consultation with key stakeholders and to identify appropriate outcome measures relevant to people with young-onset dementia and carers.Systematic review registrationAt present, scoping reviews are not eligible for registration on the international prospective register of systematic reviews (i.e. PROSPERO).
Highlights
Physical activity has been cited as a potential symptomatic treatment option for people living with dementia
The aim of this review is to systematically explore and critically appraise the current state of the evidence regarding physical activity for people with young-onset dementia and carers
The findings of this review could serve as a basis for consultation with key stakeholders, such as younger people with dementia, carers and service providers, and could generate collaborative ideas about what would make for effective future physical activity interventions
Summary
Physical activity has been cited as a potential symptomatic treatment option for people living with dementia. Much of the research concerning physical activity and dementia considers older adults, and there are several review articles summarising the evidence in this area. Less is known about physical activity for younger people with dementia, despite the marked differences in needs and preferences between the two groups. The aim of this scoping review is to systematically explore and critically appraise the current state of the evidence regarding physical activity for people with young-onset dementia and carers. Younger people with dementia may experience different psychosocial challenges compared to those diagnosed in later life, such as coping with an unexpected decline in health during midlife, loss of employment, caring for children and/or older relatives and managing changes in spousal/ familial relationships [7]
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