Abstract

During the COVID-19 pandemic, government and health officials introduced measures such as social distancing and facility closures that amplified barriers to physical activity. Certain groups, including people with multiple sclerosis (MS), have been underserved during the pandemic. In this qualitative study we aimed to: (1) explore the physical activity experiences of people with MS during the COVID-19 pandemic; (2) identify the facilitators and barriers to physical activity during COVID-19 for people with MS; and (3) make recommendations for inclusive physical activity policy and programming. We conducted semi-structured interviews with 11 adults (9 women) with MS during January and February 2021. Following an inductive thematic analysis, three themes were developed: (1) changing opportunities and adapting to new opportunities; (2) social isolation and physical activity; and (3) adapting physical activity to stay safe from COVID-19. Common facilitators identified included having knowledge and resources to adapt activities, social connections, and access to outdoor recreation opportunities. Identified barriers included fear and anxiety related to the spread of the virus, a loss of in-person activity options, and the closure of physical activity spaces. Online and at-home opportunities for physical activity were a valued and accessible way to address barriers to physical activity for people with MS, and should be maintained post-pandemic while considering flexibility to accommodate variable support needs.

Highlights

  • Following an inductive thematic analysis, three themes were developed: (1) changing opportunities and adapting to new opportunities; (2) social isolation and physical activity; and (3) adapting physical activity to stay safe from COVID-19

  • Using a qualitative approach framed by the social ecological model, the aim of this study was to describe the experiences of physical activity for people with multiple sclerosis (MS) during the COVID-19 pandemic and identify barriers and facilitators to physical activity behavior

  • This study provides novel insights into the experiences of people with MS during the COVID-19 pandemic

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Summary

Introduction

Multiple sclerosis (MS) is a chronic autoimmune disease affecting the central nervous system. Symptoms of MS vary by individual, disease type and progression, but common symptoms include vision impairment, loss of coordination and motor function, sensory disturbances, psychological impairment, cognitive impairment, and paralysis [1,2]. People with MS score clinically significantly worse than the general population on measures of fatigue, pain inference, general well-being, and quality of life [3,4].

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