Abstract
Research suggests that routine collection of Patient Reported Outcome Measures (PROMs) can contribute to clinical decision-making and improve health, but their systematic implementation in Ontario, outside the Edmonton Symptom Assessment (ESAS), has not yet occurred. While ESAS is a valid symptom screening tool, it does not allow customization to disease specific symptoms or toxicities nor does it reflect the multidimensional impact of cancer on physical, emotional and social health. Reaching consensus on a core set of PROMS for each of these domains is critical to improving health and monitoring the impact of cancer. However, applying numerous PROMs is burdensome to patients and evaluators. We are now moving forward to make routine PROM data collection a reality in the cancer system. On-PROST aims to improve the patient experience of cancer and the quality of care through the routine collection of a standardized set of (PROMs) for use in clinical care, and to advance the science of cancer treatment through research across the cancer continuum. Based on initial consensus for the implementation of core PROM data (PROMs-Cancer Core), we will develop a cohesive research agenda and foster the development, standardization and implementation of core PROMs relevant across cancer populations for research use and clinical practice. On-Prost focuses on five cancer research areas: Health Services Research; Biomarker Research; Radiation Oncology; Palliative and Supportive Care; and the PROMs-Cancer Core items. We plan to develop national and international partnerships, and to foster the development, standardization and implementation of core PROMs relevant across cancer populations and for disease specific purposes for routine clinical care and trials. Our goal is to foster common PROMs with multiple purposes, including performance and impact of cancer reporting, that will help deliver personalized quality care and treatment, and will concretely impact on cancer control and policy over the next five years.
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