Abstract
Personalisation has dominated social care across OECD countries over the past 20 years. UK policy evolved from the efforts of disabled peoples’ organisations (DPOs) to secure the availability of cash payments as part of a wider drive to enable independent living. Implementation of personalisation across the UK has seen significant divergence in how governments have developed their own responses, but in each country the DPOs’ role and impact has shifted from campaigning and promoting the voices of disabled people to a more muted focus on service provision and limited policy engagement. This article draws on a series of interviews with DPOs and leading disabled activists. It highlights concerns raised related to themes around austerity, changing relationships with local government and the role of co-production in developing policy. We conclude the article by discussing the future directions for personalisation and developments in light of the COVID-19 pandemic.
Highlights
When we were talking about direct payments, I felt ... like disabled people and disabled people’s representatives ... had full ownership
In 2017, we undertook a small study to examine how personalisation in social care was being implemented in the four UK jurisdictions, interviewing some of the main disabled peoples’ organisations (DPOs), including those active in campaigning for the original direct payments legislation (Pearson 2000)
This article draws on these interviews and highlights the key issues raised around the changing values promoted in each of Pearson et al: Personalisation and the Promise of Independent Living the UK personalisation policies, how they have impacted on the wider goals of DPOs and the promotion of independent living
Summary
When we were talking about direct payments, I felt ... like disabled people and disabled people’s representatives ... had full ownership. In 2017, we undertook a small study to examine how personalisation in social care was being implemented in the four UK jurisdictions, interviewing some of the main DPOs, including those active in campaigning for the original direct payments legislation (Pearson 2000).
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