Abstract
In the context of chronic illness, the individual’s social and relational environment plays a critical role as it can provide the informal support and care over time, beyond healthcare and social welfare institutions. Social Network Analysis represents an appropriate theoretical and methodological approach to study and understand social support since it provides measures of personal network structure, composition and functional content. The aim of this mixed method study is to present the usefulness of Personal Network Analysis to explore social support in the context of chronic pain. Personal and support network data of 30 people with chronic pain (20 alters for each ego, 600 relationships in total) were collected, obtaining measures of personal network structure and composition as well as information about social support characteristics. Also, semi-structured interviews with participants were conducted to identify the context of their experience of pain, their limitations as regards leading an autonomous life, their social support needs and other aspects concerning the effect of pain on their social and relational lives. This approach shows the importance of non-kin social support providers and the significant role of non-providers in the personal networks of people suffering chronic pain.
Highlights
Chronic pain is a major public health problem due to both its prevalence and its significant effects on patients, their families and the social and professional environment, leading to a deterioration in the quality of life [1]
Given the chronic nature of pain and its variation over time, informants were asked to indicate the maximum level of pain they had experienced since its onset
This paper has focused on demonstrating the usefulness of Personal Network Analysis to study social support in a specific context of illness: chronic pain
Summary
Chronic pain is a major public health problem due to both its prevalence and its significant effects on patients, their families and the social and professional environment, leading to a deterioration in the quality of life [1]. Association for the Study of Pain (IASP) as an unpleasant sensory and emotional experience associated with actual or potential tissue damage, or described in terms of such damage [5], and is considered one of the most complex human experiences. It is subjective in nature, a leading cause of stress and the most frequent reason for medical consultation. The biopsychosocial model, considered essential in the occurrence of pain, provides a framework to understand how biological, psychological and social processes interact and affect pain significantly [1]. It is necessary to investigate the individual’s personal
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have