Abstract
BackgroundArthritis, regardless of cause, has significant physical, social and psychological impacts on patients. We aimed to identify the non-healthcare needs perceived by patients with inflammatory arthritis (IA) and osteoarthritis (OA), and to determine if these differ.MethodsWe electronically searched MEDLINE, PsycINFO, EMBASE and CINAHL (1990–2020) systematically to identify non-healthcare-related needs of people with IA or OA. All citations were screened and quality appraised by two reviewers. Data was extracted by a single reviewer.ResultsThe search identified 7853 citations, with 31 studies included (12 for OA, 20 for IA). Six areas of need emerged and these were similar in both group These were: 1) Assistance with activities of daily living especially related to a lack of independence; 2) Social connectedness: need for social participation; 3) Financial security: worry about financial security and increased costs of health-seeking behaviours; 4) Occupational needs: desire to continue work for financial and social reasons, facilitated by flexibility of workplace conditions/environment; 5) Exercise and leisure: including limitation due to pain; 6) Transportation: limitations in ability to drive and take public transport due to mobility concerns. Many areas of need were linked; e.g. loss of employment and requiring support from family was associated with a sense of “failure” and loss of identity, as social isolation.ConclusionsThis review highlights the pervasive impact of arthritis on peoples’ lives, regardless of aetiology, albeit with a limited evidence base. Improved identification and targeting of non-healthcare needs of people with arthritis is likely to improve person-centred care.
Highlights
Arthritis, regardless of cause, has significant physical, social and psychological impacts on patients
Osteoarthritis accounts for 2.19% of all years lived with disability (YLDs) for any condition worldwide; while rheumatoid arthritis (RA) accounts for 0.28% of all YLDs [2]
inflammatory arthritis (IA) was defined as any joint disease where the primary mechanism was inflammation or synovitis, including RA, systemic lupus erythematosus (SLE) and psoriatic arthritis (PsA), excluding OA or crystal arthritis
Summary
Regardless of cause, has significant physical, social and psychological impacts on patients. We aimed to identify the non-healthcare needs perceived by patients with inflammatory arthritis (IA) and osteoarthritis (OA), and to determine if these differ. For people living with OA, creating a healthcare and broader social environment that supports symptom management and capabilities to effectively self-manage a long-term disease is essential [3]. With effective treatments available for controlling disease activity, medical practitioners may focus care priorities in this area and other specific health needs (e.g. co-morbidity care), rather than broader health and social needs that may be relevant to the person. In people with other rheumatologic conditions, including lower back pain, addressing needs outside of direct medical care to provide holistic care, can improve quality of life [5]
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