Abstract
to propose a family care model for patients with chronic kidney disease in peritoneal dialysis based on evidence indicated by family members. this was a qualitative descriptive study that used the Convergent Care Research method. It was conducted at a state hospital in Rio de Janeiro, including techniques for recording individual interviews and consisted of a group of 19 study participants. Data were analyzed according to the stages proposed by the method, generating a category that used a cultural question as the basis for patient care resulting in a proposal for home-based family care. the patient care model proposed includes dialogue and reflection in sharing the knowledge of "professional" and "popular" systems, aiming to improve the patient's quality of life. family members were able to promote care based on cultural preservation, accommodation and repatterning, as proposed by Leininger's Sunrise Model.
Highlights
METHODChronic kidney disease and its treatment by dialysis lead to circumstances that affect the physical and psychological aspects of patients’ lives, which may impact their personal, family and social spheres
This study aimed to propose a family care model for chronic kidney disease patients who receive peritoneal dialysis based on evidence indicated by their family members
With regard to the Sunrise Model, this study identified in participant interviews, the components of social structures and world view factors that influence patient care and health
Summary
Chronic kidney disease and its treatment by dialysis lead to circumstances that affect the physical and psychological aspects of patients’ lives, which may impact their personal, family and social spheres. These circumstances force patients to change their lifestyle to fulfill the demands of a routine full of medical procedures, doctor’s visits and exams. The experience of living with a patient with a chronic disease changes the attitudes and practices of their families, creating new meanings and causing those involved with the patient to change their habits and expectations because of the new reality(1) These changes do not always occur because the family members want them, but they occur because of the situation. When the family member assumes this role only because of the situation, there may be very little participation, with a lack of sensitivity on both sides(2)
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