Abstract

BackgroundChronic kidney disease (CKD) patients rely on non-professional health care providers, namely caregivers to manage their long-term condition. Despite the growing literature on CKD patients, little is known about the perceptions of caregivers regarding integrated management of CKD.AimThe aim of the study was to explore the perceptions of caregivers with regard to integrated management of CKD patients.SettingThe study took place in selected public hospitals of KwaZulu-Natal Province, South Africa.MethodA qualitative case study design was used. A purposive sampling method was used to select the study participants. Data were collected through a semi-structured interview schedule developed from the literature. Data were analysed through thematic template approach using Health Belief Model constructs.ResultsHypertension and diabetes mellitus were risk factors that worsen progression of CKD. Unemployment, lifestyle changes and limited social interaction were revealed as negative effects of CKD. Caregivers were aware of consequences of non-engagement with integrated management. The revealed positive benefits of integrated management were mainly physiological and system-related. Barriers to engagement with integrated management were side effects of diet and haemodialysis, hot weather, unemployment, false perception of good health and shortage of kidneys for transplant.ConclusionChronic kidney disease patients require caregivers support to help with necessary changes to cope and adapt with integrated management of the disease. These caregivers experience effects of CKD, consequences of non-engagement and barriers to integrated management. Identification of caregivers perceptions offers healthcare workers a better understanding and formulation of strategies that can offer adequate support to this population.

Highlights

  • Research problemChronic kidney disease (CKD) is a slow progressive irreversible deterioration in renal function that results in the kidney’s inability to eliminate waste products, maintain acid base, fluid electrolyte balance and haemopoiesis

  • The purpose of the study was to explore the perceptions of caregivers regarding engagement with integrated management of CKD patients in selected public hospitals of KZN Province, South Africa

  • These hospitals work collaboratively in the provision of integrated management for CKD patients. They serve the population of the KZN Province including neighbouring provinces such as Eastern Cape and Mpumalanga. Focusing on these centres posed the likelihood of capturing caregivers of CKD patients from all three provinces of South Africa

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Summary

Introduction

Research problemChronic kidney disease (CKD) is a slow progressive irreversible deterioration in renal function that results in the kidney’s inability to eliminate waste products, maintain acid base, fluid electrolyte balance and haemopoiesis. In Africa, studies available report a prevalence of about 10% (Barsoum 2013). The prevalence of CKD in South Africa is 14.3% (Duran 2014). Assounga, Hariparshad and Madala (2012) revealed the approximate incidence of CKD from 1000 to 2000 patients per year in KwaZulu-Natal (KZN) Province. Common causes of CKD are diabetes mellitus and hypertension (Shailendranath, Ushadevi & Prashant 2014; Venkateswararao et al 2015). Hypertension is the leading cause of CKD in SubSaharan Africa and accounts for 45.6% of CKD in South Africa (Assounga et al 2012). Chronic kidney disease (CKD) patients rely on non-professional health care providers, namely caregivers to manage their long-term condition. Despite the growing literature on CKD patients, little is known about the perceptions of caregivers regarding integrated management of CKD

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