Abstract

The purpose of this paper is to provide guidelines to facilitate the inclusion of people with disabilities as subjects in research. Practical suggestions and ethical issues are discussed. The guidelines are separated into components of the research process: (a) locating and selecting subjects, (b) communicating with caregivers and association personnel, (c) obtaining informed consent, (d) preparing subjects for participation in research, and (e) reporting research results. The guidelines ensure treatment of subjects with dignity and improve research quality.

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