Abstract
ObjectivesThe aim of this study was to understand what influenced people living with dementia and their family carers’ adherence to the home-based component of a Tai Chi exercise intervention.MethodDyads, of people living with dementia and their family carers, who participated in the intervention arm of the Tai Chi for people living with dementia trial, were invited to join weekly Tai Chi classes for 20 weeks and practice at home. Semi-structured dyadic home interviews were conducted on average after 16 weeks of classes. The views of 15 dyads with a range of home practice adherence were sought in semi-structured interviews. The interviews were analysed using an inductive thematic approach.ResultsMost participants found time to practise Tai Chi at home and practised for 18 hours on average. Amongst the barriers to adherence were participants’ competing commitments and a booklet not sufficiently conveying the Tai Chi movements. Hence, a video or DVD was requested by participants. Facilitators of their adherence to the home-based component of the intervention were their enjoyment of the practice and the development of a habit, which was supported by their commitment to the study and their willingness to benefit from Tai Chi.ConclusionEnjoyment and perceived benefits had a great impact on participants living with dementia and their carers’ adherence to home-based Tai Chi practice. However, difficulties to perceive the Tai Chi movements through images might be hindering sustained participation. Hence, alternative aids such as videos and DVDs should be explored to facilitate adherence.
Highlights
It is estimated that around 50 million people around the world are currently living with dementia (Alzheimer’s Disease International, 2015)
A video or DVD was requested by participants. Facilitators of their adherence to the home-based component of the intervention were their enjoyment of the practice and the development of a habit, which was supported by their commitment to the study and their willingness to benefit from Tai Chi
This study aims to understand what influenced Tai Chi home practice adherence among people living with dementia and their family carers’ in the context of the TAi ChI for people living with demenTia (TACIT) trial (Trial Registration: NCT02864056) (Nyman et al, 2018)
Summary
It is estimated that around 50 million people around the world are currently living with dementia (Alzheimer’s Disease International, 2015). Such prevalence makes dementia the second leading cause of disability amongst older adults, making it a public health priority (WHO, 2018). People living with dementia are at a greater risk of falls (Shaw, 2003). The consequences of falls in older adults living with dementia are worse than for their peers and include a higher dependence towards their family carers and risk of death (Allan et al, 2009; Fernando et al, 2017; Shaw, 2003)
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