Abstract

IntroductionPelvic congestion syndrome is a controversial topic. Pelvic vein embolization is a minimally invasive treatment for pelvic congestion syndrome. We aimed to assess the quality of information available on the Internet and determine how accessible information provided by the main IR societies was to patients.Materials and methodsThe most commonly used term relating to pelvic vein embolization was searched across the five most-used English language search engines, with the first 25 web pages returned by each engine included for analysis. Duplicate web pages, nontext content and web pages behind paywalls were excluded. Web pages were analyzed for quality and readability using validated tools: DISCERN score, JAMA Benchmark Criteria, HONcode Certification, Flesch Reading Ease Score, Flesch–Kincaid Grade Level, and Gunning–Fog Index.ResultsThe most common applicable term was “Pelvic Vein Embolization”. Mean DISCERN quality of information provided by websites is “fair”. Flesh–Kincaid readability tests and Gunning–Fog Index demonstrated an average “college level” of reading ease. HON code certification was demonstrated in less than one third of web pages. Professional societies and scientific journals demonstrated the highest average JAMA and DISCERN scores, while for-profit organizations and healthcare providers demonstrated the lowest. Only information from 1 of 3 interventional societies was included in the first 25 search engine pages.ConclusionThe quality of information available online to patients is “fair” and outside of scientific journals the majority of web pages do not meet the JAMA benchmark criteria. These findings call for the production of high-quality and comprehensible content regarding interventional radiology, where physicians can reliably direct their patients for information.

Highlights

  • IntroductionPelvic vein embolization is a minimally invasive treatment for pelvic congestion syndrome

  • Pelvic congestion syndrome is a controversial topic

  • The quality of information available online to patients is “fair” and outside of scientific journals the majority of web pages do not meet the JAMA benchmark criteria. These findings call for the production of highquality and comprehensible content regarding interventional radiology, where physicians can reliably direct their patients for information

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Summary

Introduction

Pelvic vein embolization is a minimally invasive treatment for pelvic congestion syndrome. We aimed to assess the quality of information available on the Internet and determine how accessible information provided by the main IR societies was to patients. Interventional Radiology (IR) has revolutionized treatment for a wide range of conditions, including pelvic congestion syndrome (PCS) by offering pelvic vein embolization as a treatment. While pelvic vein embolization can offer a high success rate of symptom relief (Brown et al 2018) it should be noted that treatment of PCS is a controversial area. The primary purpose of this study was to assess the readability and quality of online information for patients with regard to pelvic vein embolization using a variety of online instruments and quality measures. Pelvic (2020) 3:52 congestion syndrome was chosen because it is controversial and quality information would help patients navigate the problem and inform themselves. A secondary aim was to assess the information provided by large Englishspeaking IR societies such as the Cardiovascular and Interventional Society of Europe (CIRSE), the Society of Interventional Radiology (SIR) and the British Society of Interventional Radiology (BSIR)

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