Pediatric Palliative Care in Sub-Saharan Africa: Understanding the Need, Approaching Solutions (TH327)

Abstract

1.Describe the background of pediatric palliative care in sub-Saharan Africa, with emphasis on epidemiologic need and unique challenges to care.2.Examine a model of pediatric palliative care delivery in South Africa and achieve an understanding of the program's approach to continued growth and sustainability.3.Identify strategies for advancing pediatric palliative care clinical and research activities on the subcontinent. The case for improving access to pediatric palliative care in sub-Saharan Africa is a compelling one. It is estimated that approximately 50% of all pediatric deaths worldwide happen in sub-Saharan Africa, largely due to the burden of perinatal illness and preventable childhood illnesses. Simultaneously, the ability to manage incurable and life-limiting conditions such as HIV/AIDS, cancer, and prematurity on the subcontinent is growing. Comprehensive palliative care that addresses physical symptoms, psychosocial needs, and medical decision making can greatly impact the quality of care for African children and families facing serious illness and may also influence resource utilization within the subcontinent's growing healthcare systems. This session will provide participants with insight into the status of pediatric palliative care in sub-Saharan Africa and the unique cultural and logistical challenges that arise in this setting. The Big Shoes Foundation, a nongovernmental organization providing pediatric palliative care services throughout South Africa, will be highlighted as a model for developing pediatric palliative care services in Africa. Emphasis will be placed on examining the organization's approach to clinical care and government and community partnerships. The presentation will conclude with an exploration of how we as a global network of palliative care researchers and clinicians can help to build capacity in this vital area.