PD15-08 THE EXSTROPHY EXPERIENCE: A NATIONAL SURVEY ASSESSING SEXUAL FUNCTION AND FERTILITY OUTCOMES IN ADULTS WITH BLADDER EXSTROPHY-EPISPADIAS COMPLEX

Abstract

You have accessJournal of UrologyPediatric Urology I (PD15)1 Sep 2021PD15-08 THE EXSTROPHY EXPERIENCE: A NATIONAL SURVEY ASSESSING SEXUAL FUNCTION AND FERTILITY OUTCOMES IN ADULTS WITH BLADDER EXSTROPHY-EPISPADIAS COMPLEX Kelly Harris, Natalia Arias Villela, Ridwan Alam, Wayland Wu, Rachel Davis, Pamela Artigas, Heather DiCarlo, and John Gearhart Kelly HarrisKelly Harris More articles by this author , Natalia Arias VillelaNatalia Arias Villela More articles by this author , Ridwan AlamRidwan Alam More articles by this author , Wayland WuWayland Wu More articles by this author , Rachel DavisRachel Davis More articles by this author , Pamela ArtigasPamela Artigas More articles by this author , Heather DiCarloHeather DiCarlo More articles by this author , and John GearhartJohn Gearhart More articles by this author View All Author Informationhttps://doi.org/10.1097/JU.0000000000001997.08AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: The bladder exstrophy-epispadias complex (BEEC) is a rare spectrum of congenital genitourinary malformations with an incidence of 1:10,000 to 1:50,000. Advances in reconstructive surgical techniques have improved clinical outcomes, but there is a paucity in data about disease sequela in adulthood. This is the largest survey to date in the United States exploring sexual function and fertility outcomes in adults with BEEC. METHODS: Respondents were over the age of 18 with a diagnosis of bladder exstrophy, cloacal exstrophy, or epispadias. They were treated at the authors’ institution, included in the Association for Bladder Exstrophy Communities (ABeC) mailing list, and/or engaged in ABeC social media. A survey was created using uniquely designed questions and validated questionnaires. Survey responses between May 2020 and July 2020 were processed using Research Electronic Data Capture. Quantitative and qualitative statistics were used to analyze the data with significance at P<0.05. RESULTS: A total of 144 patients completed the survey portion regarding sexual function. Over half (52%) reported engaging in penetrative sexual intercourse ranging from a few times per month to 4 or more times per week. The most effective sexual positions were cited to be missionary (36.5%) and cowgirl (21.4%). Fifteen (23.8%) of the 63 patients who responded to male fertility questions reported successful biologic paternity. Eight (53.3%) patients used assisted reproductive technology (ART) with in vitro fertilization as the most common ART method used. Nineteen (25.3%) of the 75 patients who responded to female fertility questions reported a pregnancy. One of 21 (4.7%) reported using ART. Of those who achieved pregnancy, 75% were counseled on the benefits and risks of a Cesarean section and stated that there was a urologist present and/or involved in the delivery. 52.9% of patients endorsed leakage per urethra after delivery and 47% reported pelvic organ prolapse after delivery. 47% required further urologic or gynecologic surgery after delivery. CONCLUSIONS: BEEC is a lifelong congenital disorder that affects various aspects of the patient’s life including sexuality and fertility. Adult patients with BEEC endorse regular sexual activity with particular effective sexual positions. Male patients often use ART and female patients rarely do. Female patients have high rates of complications after childbirth, even when a Cesarean section is performed. Source of Funding: none © 2021 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 206Issue Supplement 3September 2021Page: e275-e275 Advertisement Copyright & Permissions© 2021 by American Urological Association Education and Research, Inc.MetricsAuthor Information Kelly Harris More articles by this author Natalia Arias Villela More articles by this author Ridwan Alam More articles by this author Wayland Wu More articles by this author Rachel Davis More articles by this author Pamela Artigas More articles by this author Heather DiCarlo More articles by this author John Gearhart More articles by this author Expand All Advertisement Loading ...