Abstract

Literature attributing the factors to patient and Health Care Professional (HCP) treatment preferences in a specific rare bleeding disorder (sRBD) is lacking. This study (i) explores qualitatively with key medical experts the relevance of existing factors published in the literature attributing to sRBD (ii) identifies any other factors that pertain specifically to the rare bleeding disorder and (iii) aims to inform the development of a patient and HCP preference survey.

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