PCR59 Understanding and Assessing the Patient-Reported Impact of Polycystic Liver Disease (PLD) on Functioning and Well-Being: Development of a New Disease-Specific Patient-Reported Outcome Measure (PROM)

M Brod,K.M Pfeiffer,L.T Waldman,A Olevik,U Axling,M Johnsson

doi:10.1016/j.jval.2023.03.1838

PCR59 Understanding and Assessing the Patient-Reported Impact of Polycystic Liver Disease (PLD) on Functioning and Well-Being: Development of a New Disease-Specific Patient-Reported Outcome Measure (PROM)

M Brod, K.M Pfeiffer + Show 4 more

https://doi.org/10.1016/j.jval.2023.03.1838

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Journal: Value in Health

Publication Date: Jun 1, 2023

Affiliation: Brod Group

#Polycystic Liver Disease #Disease-Specific Patient-Reported Outcome Measure + Show 8 more

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Abstract

PLD is a rare liver disease. Research on PLD health-related quality of life impacts is limited and mainly assessed using generic measures. Impacts may include limited mobility, decreased productivity, and emotional distress. To address this gap, the PLD-Impact (PLD-I), a disease-specific PROM, was developed.

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