Abstract

Patients attended by palliative care teams: are they always comparable populations? To answer this question we have compared the basic epidemiological characteristics of patients attended by home palliative care teams (HPCT) in two autonomous regions of Spain.We carried out a coordinated analytical, observational and prospective study in two Spanish autonomous regions: Aragon and Catalonia. Data were kept during each home care visit according to patients' needs. Inclusion criteria were: advanced cancer, over 18 years old and first contact with a HPCT. The recruitment period was 6 months. Variables included were: Survival time (days), age, sex, primary disease and extension, place of residence. Functional and cognitive state, and co-morbidity. 10 signs/symptoms: asthenia, anorexia, cachexia, dysphagia, xerostomy, dyspnoea, oedemas, level of consciousness, presence of delirium, presence of pressure ulcers and some treatment data. Others variables considered were: responsible team, origin, destination when discharge, date and place of death, number of visits made and duration of monitoring. We developed a comparison between groups by Chi-squared test or the non-parametric Mann–Whitney U test and a survival analysis by Kaplan-Meier curves and the logrank test to determine differences between factors. The SPSS version 15.0 software package was used.698 patients were included, 56.2% from Aragon and 43.8% from Catalonia. 60.3% were males, without differences between the regions. Characteristics relative to age, sex, place of residence and extension of oncological diseases were similar for both groups. We found significant differences between the two populations relative to survival time, co-morbidity, functional state, presence and intensity of a number of symptoms and the treatments, patient monitoring and the their destination after discharge.We can conclude that palliative care teams cover different profiles of patients with regard to their co-morbidity, functional, cognitive and symptomatic states. It must be pointed that the organization of palliative care services and their experience appears to condition the profile of patients they attend. There is a need of consensus on the basic descriptors for palliative care patients in order to ensure that results will be comparable.

Highlights

  • Saunders started the modern hospice movement in 1967 with the founding of St Christopher’s Hospice in London (Clark 2000)

  • 698 patients were included, of which 56.2% were from Aragon and 43.8% were from Catalonia. 60.3% were males, without differences between the regions (Figure 1)

  • This work illustrates the differences that exist in the characteristics of patients attended by home palliative care teams in two different neighbouring regions in Spain

Read more

Summary

Introduction

Saunders started the modern hospice movement in 1967 with the founding of St Christopher’s Hospice in London (Clark 2000). The European Association for Palliative Care (EAPC) carried out a study on the development of palliative care comparisons, it is necessary to develop a common language (von Guten 2007). With this aim, the EAPC published its suggestions for use in Europe of a common terminology following a process of consensus with national associations. Quality standards will be defined based on this terminology of consensus. Guidelines for regulations and standards are necessary for health care professionals working in the field of palliative care, and for those entrusted with taking health-related decisions, who are responsible for providing patients with suitable access to palliative care (Radbruch et al 2009; Radbruch et al 2010)

Methods
Results
Conclusion
Full Text
Published version (Free)

Talk to us

Join us for a 30 min session where you can share your feedback and ask us any queries you have

Schedule a call