Patient-Reported Outcomes of Utilising Person-Generated Health Data in Simulated Rehabilitation Technology: Perceptions of Stroke Survivors.

Abstract

Patient-reported outcome measures (PROMs) contribute to improving the evidence base in many areas of clinical care. An area where PROMs can help build the evidence base is in person-generated health data (PGHD) that is available to people who engage with many health technologies. An important use case for PGHD outcomes is in simulated poststroke rehabilitation that use body-tracking technologies. This study gathered stroke survivor perceptions-through 2 focus groups and 5 interviews-on PGHD effects from a leading poststroke simulated rehabilitation technology. Deductive thematic analysis was performed. The findings show that PGHD outcomes of utilising PGHD can be measured. Moreover, the findings provided a deeper understanding of PGHD effects and broadened the scope through the perceptions of stroke survivors themselves. This work will further refine and validate the development of a PROM for utilising PGHD for poststroke simulated rehabilitation systems, and has wider relevance and application.